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May 11, 2007 |
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PARENTS POINT TO POSITIVE ASPECTS OF DOWN SYNDROME CHILDREN
The parents are “introducing their children to genetic counselors and obstetricians at meetings designed to educate them to the fact that Down syndrome children can achieve many things such as learning to read, playing a musical instrument and holding a job. They have a deep-seated fear for their children’s well-being in a world where there are fewer people like them. But as prenatal tests become available for a range of other perceived genetic imperfections, they may also be heralding a broader cultural skirmish over where to draw the line between preventing disability and accepting human diversity. ‘We want people who make this decision to know our kids,’ said Lucy Talbot, the president of the Detroit support group.” (The Dallas Morning News, 5/10/07)
About 90% of pregnant women who are given a Down syndrome diagnosis undergo an abortion. Parent advocates say that the richness of their children’s lives is poorly understood. Early medical intervention and new expertise in infant heart surgery stave off many health problems, and legally mandated inclusion in public schools has created opportunities for friendship and fostered broader social awareness.
Both houses of the Texas Legislature, by overwhelming numbers, voted for bills that would vacate Perry’s order. On May 8, Perry did not use his veto power, but instead allowed the bill to become law without his signature. All the while he refused to admit that he had abused the power of his office by trampling on the rights of parents. The best comment we have seen was that of Rep. Dennis Bonnen, the author of the House bill, who said, “The governor has missed the point that just because you don’t want to offer up 165,000 11-year-old girls to be Merck’s study group doesn’t mean you don’t care about women’s health.”
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